This Ain't Therapy... or Anything.
I have this... stuff that bounces around in my head & I have to do something with it... so here it is. My thoughts uncensored, to be fair you've been warned. ^_~!
These are the confessions of a part-time vegan, former pastry chef, and a full time epicurean.
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congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

30 minutes ago | J | 193,151 notes

the-devil-andgod:

last-luna:

thecruelbloom:

home

My city

The most lovely part of Atlanta ❤️

I make my journey once a month into the city jusy for Little 5.

43 minutes ago | J | 4,683 notes
irisparry:

downto142:

frettedtoflame:

renrevenge:



I’M FUCKING SCREAMING OMGGGGGG THE TIME HAS COME FOR THE 90S TO ROMANTICIZED BY NON-90S KIDS FUCK

I feel like a legend.

OH MY FUCKING GOD


Trololololol… they just described my teen years and they were NOT that sexy LoL

irisparry:

downto142:

frettedtoflame:

renrevenge:

I’M FUCKING SCREAMING OMGGGGGG THE TIME HAS COME FOR THE 90S TO ROMANTICIZED BY NON-90S KIDS FUCK

I feel like a legend.

OH MY FUCKING GOD

Trololololol… they just described my teen years and they were NOT that sexy LoL

45 minutes ago | J | 45,069 notes
47 minutes ago | J | 54,344 notes

gingerandfair:

"Like sexy masculine snack cakes" - chazzam

Agreed, honey. You just wanna eat them up.

1 hour ago | J | 939 notes
32,279 plays

breakfast-with-satan:

666kira:

"You’re going to have sex, get pregnant and be ruined for the rest of your life."

Omg

queen

1 hour ago | J | 8,995 notes

burningupasun:

I am the Bad Wolf. I create myself. I take the words, I scatter them in time and space. A message to lead myself here. 

1 hour ago | J | 453 notes

real-scars-fake-smiles:

Married life with Ellen and Portia.

IDC HOW MANY TIMES IVE REBLOGGED THIS IT IS LITERALLY MY FAVOURITE FUCKING THING

1 hour ago | J | 624,054 notes
killthebloodyredprinceofdeath:

parisiansunrisemoroccanmoonlight:

heyveronica:

megustamemes:

Will Smith recognized the cameraman!

will smith is a national treasure

if you have a job he has a job..someone has to film yo ass homie

the greatest i swear

killthebloodyredprinceofdeath:

parisiansunrisemoroccanmoonlight:

heyveronica:

megustamemes:

Will Smith recognized the cameraman!

will smith is a national treasure

if you have a job he has a job..someone has to film yo ass homie

the greatest i swear

1 hour ago | J | 366,688 notes
plannedparenthoodla:

Fact Friday: 1 in 2 sexually active youth will get an STD by 25. You have the power to protect yourself!
It may seem unbelievable, but in fact, 1 in 2 sexually active young people will get an STD by 25.  And there’s only one person in the world that can protect you from becoming part of the statistic… yourself!  But that doesn’t mean that you have to do it alone.  Here are some tips on how to stay healthy:
Use Condoms: Condoms are one of the only birth control methods that help prevent STDs. Luckily, they are easily accessible and affordable - and even available for free at a local Planned Parenthood Health Center. 
Talk to a Provider about Getting Tested: The most common symptom of an STD is no symptom at all. If you are sexually active, it’s important to get tested regularly.
Talk to your partner about getting tested: Talking with your partner is an important way to protect yourself and your future partners.

plannedparenthoodla:

Fact Friday: 1 in 2 sexually active youth will get an STD by 25. You have the power to protect yourself!

It may seem unbelievable, but in fact, 1 in 2 sexually active young people will get an STD by 25.  And there’s only one person in the world that can protect you from becoming part of the statistic… yourself!  But that doesn’t mean that you have to do it alone.  Here are some tips on how to stay healthy:

Use Condoms: Condoms are one of the only birth control methods that help prevent STDs. Luckily, they are easily accessible and affordable - and even available for free at a local Planned Parenthood Health Center.

Talk to a Provider about Getting Tested: The most common symptom of an STD is no symptom at all. If you are sexually active, it’s important to get tested regularly.

Talk to your partner about getting tested: Talking with your partner is an important way to protect yourself and your future partners.

1 hour ago | J | 939 notes

monkeysaysficus:

joshisasoftie:

sixpenceee:

Mayflys are a winged insect that have a short lifespan. They mate in such a way that all of them mature in the exact same time. The will die out soon, but for the time being Wisconsin looks like something straight out of a horror movie. 

SOURCE

THIS IS SOME MOSES SHIT

THIS IS SOME SHIT UP WITH WHICH WE WILL NOT PUT

1 hour ago | J | 13,172 notes

redhawtrenny:

revanism:

assbutt-in-the-garrison:

heartnmavin:

anescapedfish:

positiveclarity:

all-in-all-love:

ask-monsuir-grantaire:

doughnut-tax-outrage:

iwearadeathfrisbeenow:

tyleroakley:

Yikes.

THAT IS LITERALLY WHAT ANY SCHOOL HEALTH CLASS WOULD TELL YOU TO DO.

So she’s getting punished for doing the right thing? She should have let her friend drive drunk? Should she have let her friend kill herself in an auto accident? 

Reblogged it before and i’ll fucking reblog it again.

glad bhs isnt like this

WAIT I KNOW HER WTF?

THIS IS FUCKING BULLSHIT

THIS IS HOW YOU GET KIDS KILLED

Whats the school got to do with it though? This happened outside of school hours so why are they getting involved?

Welcome to America.

She’s being suspended for doing something that’s literally not only legl but recommended by the driver’s ed handbook.

Guys, let’s be honest.  The American school system is complete shit and cares about nothing but themselves.  

ALL THEY TELL IS LIES, AND WHEN YOU DO SOMETHING GOOD YOU GET PUNISHED FOR IT BECAUSE “it gives us a bad image”???

1 hour ago | J | 72,862 notes

sunworldstories:

by Chiara Bautista

We are absolutely in love!

1 hour ago | J | 33,840 notes

sararye:

sararye:

image

image

image

image

1 hour ago | J | 14 notes

Expectations Vs. Reality / Game of thrones

1 hour ago | J | 104,512 notes